On Wednesday 29th March, we launched our ground-breaking Precision Medicine project at the House of Commons. We announced funding of £1.5 million for Precision Medicine - a brand new form of treatment for children with cancer.
Watch our short video to see how the day went.
A very special day
The event was hosted by Shadow Minister for Public Health, Sharon Hodgson MP. Amongst our guests were childhood cancer families, concerned MPs, celebrity friends and involved supporters. It was a successful day, aimed at raising awareness amongst MPs and stakeholders of this exciting new Precision Medicine project.
Sharon Hodgson MP said:
“I am humbled that we are here today to launch Children with Cancer UK’s new £1.5M fund, to support the deployment of Precision Medicines across children’s cancers. Precision Medicine will target specific cancers in children.”
Read more: £1.5m Precision Medicine funding
Claire Rumble, mum to cancer survivor Louis said:
“Louis had three years of chemotherapy, steroids and other medication. We gave him daily and weekly chemotherapy at home. He lost 20% of his body weight. My family and I feel very honoured to be here today for the launch of Precision Medicine and feel very positive about the future.”
Read more: Louis' story | Louis' Appeal
Our Chief executive, Cliff O’Gorman said:
“The theme for today is helping to increase the number of children surviving and to provide kinder treatments. This is a dream for me and for many others in this room - that we can make a difference over the next few years with Precision Medicine.”
Professor Louis Chesler, who is leading this Precision Medicine research said:
"The project has two components: it's going to take advantage of the very rapid changes in technology and the ability to sequence the genes and the genetic changes that drive these tumours to grow. Treating patients in a professional fashion will maximise the chance that these drugs can be effective and can extend survival."
We have awarded £1.5m to fund a programme for rapid DNA sequencing for every child in the UK diagnosed with a solid tumour.
Not generally available on the NHS, the ambition is to get Precision Medicine off the ground in the UK so it can be adopted nationally.
More about the day
Over 200 guests attended this national landmark event, with keynote speeches from Shadow Minister for Public Health, Sharon Hodgson MP, our Chief Executive, Cliff O’Gorman, Trustee, Linda Robson, Professor Louis Chesler, Institute of Cancer Research, who is leading this Precision Medicine research and Claire Rumble, mum to cancer survivor, Louis.
The Little Translator video by Louis and Grace explaining Precision Medicine made its premiere and was well received by all the guests, as was our Infographic, giving a graphic visual representation of what Precision Medicine is, 'Benefits of Precision Medicine',' Why now' and 'What we are funding'.
Infographic explaining Precision Medicine
We had one or two celebrities along too: Linda Robson, Daniel Roche (from the sitcom Outnumbered), Michelle Ackerley (One show presenter), Bob Barrett (Holby City), Kaye Wragg (Holby City and The Bill) and last but not least, Mr.Men characters, Mr. Strong, Little Miss Sunshine and Mr. Bump.
Take a look at the photos on our Flickr photo site
We were absolutely delighted to receive two cheques on the day. One from The Sun’s Smiles at Christmas campaign, which raised £29,302.45 through the papers generous readers. The second cheque presentation was from Saloni Thakkar, who herself battled with breast cancer and wanted to give something back. Saloni held a charity ball and raised an amazing £41,100 for us.