Patient stories

Finding out that your child has cancer can be the start of an uncertain and difficult time for families.
 
To try and help, a number of families have kindly shared their very personal experiences with us.

Share your story

If your child has been affected by cancer and you would like to share your story, we'd be keen to hear from you.

Your story can help others, raise awareness of childhood cancer or inspire people to support our work.

Please call us on 020 7404 0808, send us an email or write to us at Children with Cancer UK, 51 Great Ormond Street, London WC1N 3JQ with your details. Thank you.

Dylan C

13 July 2016
Dylan with dolphin
Eight year old Dylan was diagnosed with acute lymphoblastic leukaemia (ALL) in January 2015. He is still undergoing treatment. His mum, Lorraine, tells their story so far:

"Dylan was having high temperatures in the evenings. When we took him to the doctor’s, during the day, they could never find anything wrong apart from swollen glands. They gave him a course of antibiotics, but the temperatures continued. Dylan wasn’t himself Dylan wasn’t himself - I knew something was wrong. Rather than join his brothers playing, he preferred to snuggle on the sofa with me. When we noticed that Dylan had a swollen wrist my husband and I decided to tak...
read Dylan C's story

Elliott's story

17 May 2016
Elliott in a sunny garden
When Elliott was 16 he developed an abnormal swelling on his leg. It was diagnosed as a rare type of soft tissue cancer. Elliott is now 19 and fighting the cancer for the third time. He tells us his story so far:

“It was 2013 and I was 16. I had a very abnormal swelling on my leg that wouldn’t go away and was getting bigger and bigger. I eventually got a referral to see a specialist. I had a biopsy, an X-ray and an MRI scan. I got told very quickly that there was something very worrying going on and I was sent to see an oncologist. Very bad news: alveolar rhabdomyosarcoma I was given the very bad news that I had alveolar rhabdomyosarcoma ...
read Elliott's story's story

Sam

14 April 2016
Sam and family at the Grand Pier day out
Five year old Sam was having terrible pains in his neck and hip. Weeks later, and after many tests, he was diagnosed with acute lymphoblastic leukaemia. His mum, Tamsin, tells their story so far:

"In the weeks leading up to his diagnosis, Sam had been unusually tired. He was asking to drive places, rather than walk. He had also been struggling in his swimming lessons and was complaining of a sore neck. Doctor prescribes pain killers and physiotherapy This time the doctor suggested referring Sam for physiotherapy. At that stage it seemed a logical thing to do.The doctor initially thought Sam had a trapped nerve in his neck and suggested pai...
read Sam's story

Bella-Rose

07 April 2016
Bella-Rose
Bella-Rose was diagnosed with acute lymphoblastic leukaemia when she was three years old. After over a year of treatment Bella has suffered a relapse. Her mum, Abbie, tells their story:

“I am writing our story whilst sitting in our hospital room. I have been here for a month with my four year old girl, Bella-Rose. Bella was being treated for acute lymphoblastic leukaemia and has relapsed. She had a year left of treatment. She was doing so well at nursery and had just started to really enjoy life again when we were given this devastating news. We had just started to enjoy the little things again It broke me to my soul. But she came through...
read Bella-Rose's story

Louisa

14 March 2016
Louisa Buttery
Louisa Buttery was only three weeks old when she was diagnosed with acute myeloid leukaemia (AML). Her parents Darren and Davina tell us their story and update us on Louisa as a teenager.

"When Louisa was born we were overjoyed. But our happiness was cut short. At just three weeks old, our baby girl was diagnosed with acute myeloid leukaemia (AML).

Louisa spent her first six months at Great Ormond Street Hospital. It was extremely tough on us all.  Our other children, Charlotte, then four, and Eddie, who was just two, made frequent trips to see Louisa and keep her company. Three courses of chemotherapy but still not in remission We realis...
read Louisa's story

Sebastian

16 December 2015
Mum and Sebastian
Sebastian was 18 months when he was finally diagnosed with cancer of the bowel. His parents knew something was wrong since birth. His mum, Natasha, tells their story:
 
Eventually, at 15 months, he was prescribed a laxative and he seemed to improve.“Since birth we knew something was wrong with Sebastian. We repeatedly took him to the doctors – it seems he had constipation.

We were told he was ok and to carry on giving him his milk. When he started to eat solids we gave him fruit, veg and high fibre foods but he still remained constipated. Eventually, at 15 months, he was prescribed a laxative and he seemed to improve. Blood in his urine A...
read Sebastian's story

Maisie de Wolf

10 December 2015
Maisie and Jack and Mum and Dad
Maisie was 14 months when she was diagnosed with leukaemia. Her mum, Mimi, tells their story. And Maisie, now 21, also tells us how well she is doing. Maisie's mum, Mimi: "The day before Fathers’ Day, June 1995, was the day my beautiful 14-month-old daughter was diagnosed with acute lymphoblastic leukaemia (ALL). The day "normality" took on a new meaning for us all Maisie was our second child. Our son Jack was four years old when Maisie was born. Despite being born eight weeks early, Maisie thrived and was a happy and placid baby.
As parents we became exhausted, and despite five trips to the family doctor her "virus" didn't show any signs...
read Maisie de Wolf's story

Rhiley

23 November 2015
Rhiley and Lily
When Rhiley was two years old she was diagnosed with a rare tumour called ATRT that started in her spine and spread to her brain. Her mum, Kim, tells their story:

"On 8th April 2012, in the early hours of Easter Sunday morning, I gave birth to the most perfect little girl, Rhiley Kim Bennett, weighing a whopping 10Ibs 8oz. Until 10th May 2014, Rhiley was the happiest, most adorable, funniest little girl you could ever meet.Rhiley's daddy, Richie, and I were over the moon. Our little family was complete and we could not wait for Rhiley to meet her 11 month old sister Lily. Until 10th May 2014 Rhiley was the happiest, most adorable, funniest...
read Rhiley's story

Eva

05 August 2015
Eva
Eva was 18 months old when she was diagnosed with a Wilms’ Tumour. More than 400 procedures later her mum, Rebecca, tells their story.

“On the 10th November 2013 we took our precious daughter Eva, then 18 months old, to the emergency doctor. She had shown worrying signs she wasn't well. A rare children’s kidney cancer The doctors at the hospital seemed quite concerned, but we didn't really know why. However, after further tests and scans the doctors confirmed that Eva had something called a Wilms' Tumour, a rare children's kidney cancer. At this point Eva’s life changed forever…

We were quickly referred to hospital and Eva remains under t...
read Eva's story

Louis

21 July 2015
Grace and Louis rumble
Louis was just 19 months old when he was diagnosed with acute lymphoblastic leukaemia (ALL). Mum, Claire, tells us how this news devastated her family.

“We’d had a lovely holiday in France with our 19 month old twins, Louis and Grace. But on our return, Louis wasn’t himself. There were dark red bruises on his body and he looked pale, tired, had no appetite and was waking a lot in the night. Within five days he had 30 small bruises all over his body and he was sent for blood tests.

On 10th September 2009, after just five days of feeling 'under the weather', Louis was diagnosed with leukaemia. After a bone marrow aspirate on 15th September we...
read Louis's story

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