Thank you to all of you amazing people who donate, play our raffle and raise money to help more children with cancer ring the end of treatment bell.
The Chime is your new supporter update, created especially for you. We hope you enjoy reading about how you’re making a difference!
Daisy was diagnosed with acute lymphoblastic leukaemia on the 5th of September 2016 at the age of four. Daisy had been becoming tired a lot faster and had a rash on her chest. We didn’t expect anything sinister, but we went to the GP just before her first day of school.
The GP gave us a letter to request blood tests. At the hospital, a consultant and a nurse bearing a box of tissues took us to a side room to tell us that the blood test showed Daisy had acute lymphoblastic leukaemia. I instantly broke down. After the first two weeks of treatment, we took Daisy home. It was one of the scariest things I have ever had to do. My little girl was poorly and at high risk of infection. We were given a massive amount of toxic medication and supplements to take home and administer ourselves. From this point on it was medication, fever, hospital visits, Hickman Lines, NG Tubes, blood transfusions, blood tests, platelets, MRIs, CT scans, X-Rays, finger pricks, cannulas… Daisy went through it all.
Nothing can prepare you for seeing your little girl’s lovely blonde hair thinning and falling out in great big clumps as you brush it.
I can’t recall the amount of times that made me cry but I often had tears in my eyes. Daisy handled it far better than I did, she didn’t bat an eyelid at being a baldy!
Daisy finished her treatment in November 2018 and got to ring the end of treatment bell. She is doing great, she’s bright, bubbly, smart, funny, sociable, and I couldn’t be more proud of her.
I find it difficult to write this but I want to share her story with you, so you can see how important your support is.
If you’ve been touched by Daisy’s journey, help us invest in the high quality research that really matter which would otherwise go unfunded. This helps to support children with cancers so they can be with their families for longer.
Why is it important to study childhood cancer?
Studying childhood cancer is vitally important, not only because of the urgent need to find new and better cures, but because this research can give unique insights into all cancers.
How would you best describe leukaemia to people who have never heard of it?
Leukaemia is a cancer of the blood. It is not one type of cancer but can occur in each type of blood cell as these develop. Therefore, different types of leukaemia resemble different types of normal blood cells and these can cause the blood cells to become blocked at a particular stage of their development. They carry on growing and dividing but cannot complete their development to mature blood cells.
How is your project improving outcomes for children with leukaemia?
Although there has been incredible progress in how children with leukaemia are treated, there are some types of leukaemia that are still very difficult to treat. My research aims to develop new treatments for these types of leukaemia by studying the processes underlying the disease. The goal is to develop treatments that are more specific and less toxic.
In ten years’ time, where do you see children’s cancer research?
I think fundamental discoveries in the basic biology of how cancer develops are just around the corner. Revolutions in technology mean we are about to discover how normal cells can become cancer cells. I believe that these discoveries will make a tremendous impact on how we treat children with cancer in the future.
If you would like to find out more about these projects:
Last October, we held a special Gifts in Wills event to show supporters like you the incredible research projects you are helping to fund.
By understanding the disease at the molecular level, researchers are finding new treatments for subtypes of leukaemia that are difficult to treat.
Dr. Owen Williams showed us how researchers grow normal and leukaemia cells in the laboratory. We then saw what these look like by using a microscope, as well as what the cells look like after drug exposure.
We also observed a gene-chip and learnt how this is used to examine gene expression changes in leukaemia cells. Dr. Gasparoli explained how researchers use this information to identify common drugs that can be used to treat leukaemia cells.
Daisy’s dad, Andrew shared his daughter’s story with us at this event:
Daisy’s journey inspired me to raise money for Children with Cancer UK as I feel the work they do is so vital. They have already helped fund one of the most effective clinical trials for children with the same type of leukaemia Daisy had and are now focusing their funding on cancers that are more difficult to treat so that more children can ring the end of treatment bell, just like Daisy.
If you would be interested in attending a similar event next year, please contact us at email@example.com
If you would be interested in attending a similar event next year and/or are interested in leaving a gift in your Will:
Thanks again to all our amazing supporters! Here are a few of the many amazing moments shared with us this year:
Caroline and Neve with their hairdresser Shannon. The pair raised £343 by shaving their heads.
Rat Race Marathon Marauders ran the York Marathon in a 40 person Viking boat costume, in just over six hours.
Mr & Mrs Thaker attended our Gifts in Wills event and me with Dr. Owen Williams.
Thanks to our partnership with Ladbrokes, Charlton Athletic football club organised a bucket collection which raised £1,637.
The 3rd Woodley Beavers took on their own Mini Superhero Challenge and raised an impressive £229.
Thanks to generous supporters like you donating to our recent Build a Home Appeal, we raised over £210,000 and are now able to start working on something exciting.
Keeping families together
When a child is diagnosed with cancer, the last thing a family should have to worry about is their finances. Treatment can last up to three years, during which the additional childcare, loss of earnings and travelling miles from home for treatments, puts a considerable financial burden on families.
Partnership with Ronald McDonald House Charities UK
Children with Cancer UK, in partnership with Ronald McDonald House Charities UK, have begun work earlier this year to build a Day Room. The Day Room is part of a new 62 bedroom house which provides free accommodation to around 1,000 families who have children being treated at Oxford Children’s Hospital and Critical Care Unit and Neonatal Intensive Care Unit at John Radcliffe Hospital.
The room has been designed to host recurring activities such as daily coffee mornings, parent pamper days and arts and craft sessions for siblings. These events aim to have a therapeutic benefit for families and reduce feelings of social isolation.
Thanks to supporters like you, parents will not only have a comfortable space away from the clinical environment of the Hospital to relax in, but they will be able to spend time together with close friends and other family members.
Autumn is upon us, and there’s still plenty of time for you to join us at one of the fantastic events we have coming up. Check out some of the exciting opportunities below:
If you’re looking for a big London city centre race, but you’re not ready for the Virgin Money London Marathon, try the Vitality London 10,000. It runs a similar route to the Olympic marathon, and is a unique way to see the sights of the city.
Run through East London on flat and fast city streets – Hackney Empire, Broadway Market, Victoria Park, and the London Stadium. This popular half marathon is one of the top ten half marathons in the UK and attracts over 13,000 runners!
Join us at London Marathon’s baby brother – The Vitality Big Half is a new closed road half marathon running past London’s biggest landmarks. Starting at Tower Bridge and ending by the Cutty Sark in Greenwich you can soak up the incredible atmosphere and sights.
Dirty Weekend is more than obstacle course, it’s a weekend complete with camping, miles of agility challenges and a Ministry of Sound afterparty, the whole package! Choose from a variety of distances and test yourself in this beautiful setting at the idyllic Burghley House!Take a look at all our Sports Events