Childhood Cancer Stories

After hearing the words ‘your child has cancer’, it’s normal to feel lost. You may have many questions, but don’t know where to turn.

Reading real, childhood cancer stories can help you make sense of your situation and remind you that you’re not alone. From early symptoms and diagnosis to getting life back on track, we follow and support many families on their journeys.

Have you or a family member been affected by childhood cancer?

Sharing your personal story can help families living through a similar experience, and inspire others to raise awareness for childhood cancer. Please click the button below if you have a story you’d like to tell.

You can use the filter to navigate through the cancer stories. E.g select Acute Myeloid Leukaemia to find stories on how families got to know their child had leukaemia.

Dylan with beads of courage in nhs letters
Childhood cancer stories

Patient Story – Dylan A

Dylan A’s Story Dylan was diagnosed with Langerhans Cell Histiocytosis (LCH) a rare lung cancer in February 2016, when he was…

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Stanley close up with nose tube
Childhood cancer stories

Patient Story – Stanley

Patient Story – Stanley Stanley was diagnosed with Posterior Fossa Group A (PFA) Ependymoma – grade III, a type of…

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Christopher wearing hat and smiling
Brain tumour

Patient Story – Christopher S

Christopher’s astrocytoma brain tumour story Christopher was just five years old in 1988 when he was diagnosed with stage three…

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Sienna min
Childhood cancer stories

Patient Story – Sienna

Sienna’s Story Sienna was diagnosed with acute myeloid leukaemia in December 2022, one day after her 7th birthday. Her mum,…

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Leah looking at camera in wheelchair
Childhood cancer stories

Patient Story – Leah

How I found out I had spinal cancer “I never thought it would but honestly, it does get easier over…

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Liberty shell....
Childhood cancer stories

Patient Story – Liberty

Liberty’s sarcoma story Liberty was diagnosed with Ewing Sarcoma in September 2016 on her 13th birthday. Her mum, Karen shares…

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Jesse in hospital bed having a blood transfusion during Christmas
Childhood cancer stories

Patient Story – Jesse

It started with pains in Jesse’s legs Jesse was diagnosed with acute lymphoblastic leukaemia in April 2019 when he was…

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Jacob asleep in hospital Copy
Childhood cancer stories

Patient Story – Jacob W

Jacob’s medulloblastoma brain tumour story Jacob was diagnosed with medulloblastoma, a type of brain tumour in January 2021 at the…

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Theo smiling looking at camera with no hair
Childhood cancer stories

Patient Story – Theo

Theo’s B-cell leukaemia story Theo was diagnosed with B-cell acute lymphoblastic leukaemia in July 2021 when he was just three…

Read more Patient Story – Theo