In January 2023, Stanley had his spinal surgery but they deemed it too risky to re-operate on his brain again at this time, however if radiotherapy does not help, they may consider surgery. We are waiting for radiotherapy to start at the end of March 2023 and all we can do is hope. Radiotherapy brings its own risks to our son. He will be at risk of a stroke, damage to his eyes, damage to his hearing in his only ear that works, damage to the brain stem, possibility of short-term memory loss in the future and struggling with processing information which will affect his education. There are all these risks, but he needs it to ‘give him the best possible chance’.
Kirsty, Stanley’s mum, March 2023