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Patient Story – Caroline

Caroline was diagnosed with Parameningeal Rhabdomyosarcoma (Embryonal) in March 2017. Her mum, Lucy, tells their story so far:

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Investigating inherited genes that are linked to the development of rhabdomyosarcoma

Rhabdomyosarcoma (RMS) is a rare childhood cancer. Dr Marc wants to find out which genes make children more likely to develop it. Knowing this will help us to identify children who have this cancer earlier, and begin possibly life-saving treatment sooner.
This project is looking at RMS, and genetic factors that mean certain children are more likely to get it. ...

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Identifying new treatments for children with rhabdomyosarcoma

Every year in the UK around 70 children are diagnosed with rhabdomyosarcoma, a cancer that resembles developing skeletal muscle. The available treatments have remained largely unchanged for 20 years and, although they do work for some children, can cause long-term side effects that seriously affect their normal development. New treatments are needed so that more children can recover and lead ...

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Developing immunotherapy for childhood sarcomas

Some childhood cancers don’t respond well to chemotherapy, but there is hope in the form of immunotherapy. Doctors have already achieved success using immunotherapy techniques to treat children with leukaemia and neuroblastoma. Now Professor John and his team aim to extend these techniques to treating childhood sarcomas.
For childhood cancers that don’t respond well to chemotherapy, immunotherapy offers new hope. ...

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Patient Story – Ross


At just 18 months old, Ross was diagnosed with orbital rhabdomyosarcoma – a rare soft-tissue cancer that developed in his eye.

His mum Lesley tells their story.




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Patient Story – Sebastian


Sebastian was 18 months when he was finally diagnosed with cancer of the bowel. His parents knew something was wrong since birth.

His mum, Natasha, tells their story.



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