Childhood Cancer Stories

After hearing the words ‘your child has cancer’, it’s normal to feel lost. You may have many questions, but don’t know where to turn.

Reading real, childhood cancer stories can help you make sense of your situation and remind you that you’re not alone. From early symptoms and diagnosis to getting life back on track, we follow and support many families on their journeys.

Have you or a family member been affected by childhood cancer?

Sharing your personal story can help families living through a similar experience, and inspire others to raise awareness for childhood cancer. Please click the button below if you have a story you’d like to tell.

You can use the filter to navigate through the cancer stories. E.g select Acute Myeloid Leukaemia to find stories on how families got to know their child had leukaemia.

Alfie in hospital bed light
Childhood cancer stories

Patient Story – Alfie H

Alfie’s medulloblastoma brain tumour story Alfie was diagnosed with medulloblastoma, a type of brain tumour in September 2019 at the…

Read more Patient Story – Alfie H
Dax before he we ever ill
Childhood cancer stories

Patient Story – Dax

Dax’s story – rhabdomyosarcoma and brain tumour symptoms Dax was just two years old when he was diagnosed with cerebellopontine…

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Luciano with his sister as toddlers
Childhood cancer stories

Patient Story – Luciano

Luciano complained he couldn’t walk and had bruising on his legs Luciano was diagnosed with acute lymphoblastic leukaemia when he was…

Read more Patient Story – Luciano
Florie smiling with nasal tube
Childhood cancer stories

Patient Story – Florie

Florie’s Wilms’ tumour story – kidney cancer Florie was diagnosed with Wilms’ tumour Stage 4 when she was two years old…

Read more Patient Story – Florie
Ellen during treatment 2008
Childhood cancer stories

Patient Story – Ellen

It started with bruising on Ellen’s arms and legs “My story has been long and I guess it’s not your…

Read more Patient Story – Ellen
lenny with christmas presents
Childhood cancer stories

Patient Story – Lenny

Lenny’s non-hodgkin lymphoma survivor story Lenny was diagnosed with T-Cell Non-Hodgkin Lymphoma when he was eight years old in 2018….

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Harry 5 days after surgery before his Shunt operation.
Childhood cancer stories

Patient Story – Harry HP

Patient Story – Harry HP Harry was diagnosed with ependymoma of the posterior fossa – grade II, a type of…

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Enguerrand during treatment lying in bed with bunny rabbit..
Brain tumour

Patient Story – Enguerrand

Enguerrand’s brain tumour story Enguerrand was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a type of brain tumour in July…

Read more Patient Story – Enguerrand
Lois during cancer treatment (3)
Childhood cancer stories

Patient Story – Lois

Lois finished her leukaemia treatment and is now in remission Lois was diagnosed with acute myeloid leukaemia when she was…

Read more Patient Story – Lois