Update: October 2023
We are coming up to three years since Alfie finished treatment and he is doing really well. He is now in Year Nine and is loving being back at school but this unfortunately does come with many challenges for him. Alfie is still on a reduced timetable due to extreme fatigue but he loves seeing his friends and enjoys Drama, Art and Science. School are great with Alfie and provide him with lots of support including his 1.1 support teacher.
Alfie had a busy summer enjoyed with a trip to the Lake District with family and then he was kindly invited on a sailing trip to Largs Scotland with the Ellen McArthur charity. Alfie spent four days sailing with other young people that had also been affected by a cancer diagnosis. Alfie enjoyed seeing dolphins, sailing the boat and had lots of fun enjoying games and activities. This was a great experience for Alfie and we are so grateful to the charity for giving Alfie the opportunity.
Alfie’s mobility and vision has been affected following his brain tumour diagnosis and he had to learn to walk and talk again. Recovery has been slow and intense including eight week’s inpatient rehabilitation but Alfie is now able to walk short distances with some support which is amazing, he still uses his aids for longer distances as his balance and coordination is still affected. We are so proud of how far Alfie has come! We have been trying out lots of different activities and hobbies for Alfie, before he was diagnosed he loved football and played for a local team, this is something he has really missed. Alfie now attends a PAN disability football group at our local football club which he is really enjoying.
Alfie has just enjoyed celebrating his 14th Birthday with family and his small circle of friends, we had a great time at Ninja warrior and then a lovely meal with family.
As a family we are still adapting and finding our new normal. Life after cancer still never quite feels normal but we are doing our best and appreciate the life that we have. Alfie and his family are still very committed and we continue to do lots of fundraising. Myself (Alfie’s Mom) and some friends will be participating in the Alton towers 10k in November to raise funds for children with cancer with a target of £1,000.
Alfie has also been made a finalist with his local hospital in the category of “Young Fundraiser of The Year” after raising monies for the children’s ward. Alfie, me and John, Alfie’s dad, will be attending an awards evening at our local football club.
Kerry, Alfie’s mum, October 2023