Georgia was part of a clinical research trial
As part of her treatment, Georgia was part of the UK ALL 2003 clinical trial. When Georgia first went into hospital and diagnosed with leukaemia, the consultants spoke to us about a clinical trial. We talked about it a lot as there was a lot to take in.
I didn’t really understand about minimal residual disease (MRD) and I was concerned about the possible side effects of the chemotherapy – would it affect her growth, what about puberty, could she have babies? But our consultant paediatrician explained it all really well with diagrams so we signed up.
She was initially put on treatment regimen A, the low-risk treatment arm. However the MRD tests came back inconclusive so she still had to have two further intensive blocks of chemotherapy. The extra block absolutely floored her and her little body just couldn’t take it – I wanted it to stop, and it did. She was taken off treatment and given a break for two weeks.
The trial was great to be involved with. If treatments are improved and reduced, then the side effects won’t be as bad, and future patients may not have to go through such harsh treatments. A new drug – Dexamethasone – is now part of the treatment protocol because of the trial.
Clinical trials and research are so important. There’s nothing worse than watching anyone go through cancer, let alone your little ones.