Wilms’ tumour diagnosis
Harry is one of a twin, his non-identical brother Luke weighed 6lb and Harry a very healthy weight of 8lb 4oz when they were born.
It was when Harry was in hospital at a few weeks old with croup that doctors first noticed that he didn’t look ‘normal’. On follow up appointments and after blood tests proving positive, it was confirmed that he had Beckwith-Weidemann Syndrome, an overgrowth disorder.
The main problem for children with this syndrome is that they are at an increased risk of Wilms’ tumour, a type of kidney cancer. Harry would need to undergo regular scans until the age of eight to monitor him.
During a routine scan at our local hospital in Grantham, there was slight evidence of a tumour in Harry’s right kidney. The next day we were in Queen’s Medical Centre in Nottingham and Harry was having another scan and then a CT scan. It was this day we met our amazing consultant. They could see the mass more clearly and unfortunately with Harry’s medical history, it was looking like it was a Wilms’ tumour.