Symptoms, diagnosis and treatment
It’s heartbreaking to watch your child go through cancer treatment but we’re fortunate because Lucy’s brain tumour is treatable.
Lucy was seven months old when she was diagnosed on 16 February 2012. She has pituitary blastoma, which is an embryonal tumour.
Lucy became really sick one Saturday afternoon and got worse over the weekend. She kept on being sick but didn’t have a temperature so we took her to the doctors. They thought it was just a virus but we were referred to the local hospital for rehydration treatment because she was still being so sick. Later that night that the doctors said they would need to look at her head to find out what was wrong.
She spent seven months in Birmingham Childrens’ Hospital – most of the tumour was removed in February but she needed a second surgery in August. Some of the tumour is still there and growing but because of the position, the surgeons can’t get to it.
Lucy fights her little heart out every day, nearly always with a smile and a wave. Her resilience and spirit are inspirational. Thankfully, so far, she’s doing really well. Her treatment is in an observation stage at the moment – she needs regular check ups including MRI scans, eyesight tests, neurology appointments and blood tests.
Our epic stays with Lucy in hospital were really hard on Ben, her big brother, so it was great to all attend Children with Cancer UK’s Zippo’s Circus event in September 2013.
We didn’t tell the children where we were going because quite often plans have to be cancelled at the last minute if Lucy gets really sick. We all had a fantastic day and although it was quite a jaunt down to London, it was all part of the fun for Lucy and Ben!