Rhiley’s little life was being taken away from us
On 7 January 2015 we drove to the hospital to hear what her consultant had to say. That day seems a blur. While we watched Rhiley laughing and playing with her sister we were told that if we made the decision to put her through high-dose chemo or radiation treatment, there was a big possibility she would pass away either during or after.
The consultant explained that it would be a miracle if this type of tumour did not return within months, if not weeks. We drove home, heartbroken, crying. We did not have a choice, Rhiley’s little life was being taken away from us. We knew only one thing – that time was now ticking and we had to make sure we spent every day together.
27 January: Rhiley’s legs were buckling as she walked
30 January: Rhiley could no longer walk
11 February: Rhiley attended her very first day of pre-school alongside Lily. She could not have been happier
9 March 2015: Rhiley had her sleepy medicine along with her blanky for five days of radiation to her spine. She was unable to sit up straight without pain.
We made 100% sure that Lily and Rhiley had as much family fun as we could get in between appointments, 11 blood transfusions, platelets transfusion, nurses visiting every day, Rhiley catching infections…
We celebrated Rhiley’s third birthday, 8 April 2015, on Looe’s beach, Cornwall. Rhiley in her Elsa dress eating cake and with princess balloons on the beach she was happy and smiling. Two days later Rhiley wasn’t herself. She kept saying “go home now”. It hit us hard that something wasn’t quite right. She caught E-coli and on 14 April was only able to sit up with cushions. She was unable to move her legs, neck or back. Rhiley being Rhiley still smiled beautifully every time.
20 April: Rhiley was now having ketamine three times a day to relieve her pain
22 April: Rhiley watched Snow White. She then struggled to stay awake that day. We even visited her favourite place, Thrift Farm, that afternoon. But Rhiley got worse. She suffered seizures that night and fought her hardest to stay with us
Rhiley took her last breath in mummy and daddy’s arms at 4:56am on 23 April 2015. Two weeks after her third birthday, one week before Lily’s fourth birthday, she grew her pretty princess wings.