Welcome to your Every Step newsletter which has been created for our wonderful supporters – people like you. We hope you enjoy reading about the difference you are helping to make.
Thank you for donating, playing our Grand Draws and raising money to help save the lives of children with cancer and keep families together.
Her dad, Andrew, shares their story.
Daisy had recently turned four and it was her first day at school. We were so excited for her to take this big step. But she’d been feeling tired for a couple of weeks and was getting regular styes. So, my wife took her to the GP and, worryingly, she was quickly referred to the general hospital for blood tests.
For two years and two months she went through intensive treatment. This included multiple hospital visits and stays, MRIs, cannulas, and transfusions. She also suffered with sickness, hair loss and stress. One memory that sticks with me is the attachment Daisy formed to sick bowls at the hospital. She carried one around everywhere she went due to her fear of being sick.
Daisy finished her treatment in November 2018 and is officially in remission. She’s now ten years old and really enjoys being outdoors playing with our dog, Dexter. Daisy also loves history and plans on becoming an archaeologist. I am so proud of how far she has come.
If you’ve been touched by Daisy’s journey, please help us keep investing in crucial childhood cancer research that could otherwise go unfunded. With 10 more children and young people diagnosed with cancer every day in the UK, we need to do more, but only can with your support.
If you would like to share your story, or know someone affected by childhood cancer who may like to share their story with us, we’d love to hear from you. Please email us at email@example.com or childrenwithcancer.org.uk/share-your-story
In this issue of your Every Step newsletter, we’re looking back over our 35 years of history and celebrating some of the key milestones. Our story began with one diagnosis, followed by another. In December 1986 Paul O’Gorman was given a devastating leukaemia diagnosis at age 14. His sister, Jean O’Gorman, was then diagnosed with breast cancer soon after. Both, tragically, lost their lives within months of each other. When Paul sadly passed away in 1987, his family made him a promise to help other children in the same situation.
Today we’re Children with Cancer UK. And we’ve kept that promise for 35 years.
There are so many projects to celebrate, but there’s one in particular we’d like to highlight. In 2016, we funded an exciting new research project at the University of Edinburgh, led by Professor Steven Pollard. This investigated different types of childhood glioblastoma, a form of brain tumour. By 2021, the project had resulted in a fantastic breakthrough, which greatly enhanced our understanding of how aggressive brain tumours develop in children and why they occur in specific regions of the brain. Professor Pollard and his team found that the mutation of cancer cells in different areas of the brain influences how the tumour will develop, as well as how severe it will become. This was a significant research milestone because it enabled doctors to create more effective treatment plans.
Less than one year apart, he two brothers were diagnosed with leukaemia. Ethan was only 19 months old, and his twin, Kai, was two and a half when he was diagnosed. They both needed three years of chemotherapy and much of their childhood was spent in a children’s hospital. Both brothers have now made a full recovery.
This year, Kai, now 19 years old, ran the London Marathon for Children with Cancer UK and raised an amazing £2,416. Both Ethan and Kai have achieved amazing milestones and we look forward to celebrating their future successes.
This year we finalised the new research projects we will be funding. Thanks to the ongoing support of people like you, we have pledged a total of £2,928,370. We’ll be updating our website soon with details about our 10 grant holders. Keep checking our projects we fund page for updates or click the button below to find out more.
If you’ve recently lost a beloved family member or friend, our Remembering website offers a very special way to pay tribute to them. By setting up your own page of remembrance, you and others can share wonderful memories and photos. Visitors to the page can also leave a gift in your loved one’s memory, helping to fund vital research into childhood cancer.
In 2023, we are planning more exciting virtual events and hopefully in-person days out. If you’re a family affected by childhood cancer and would like to hear more about our virtual events and activities as well as keep up to date with future events, sign up to our family newsletter.