He has been through a lot
My eyes have been opened wide to this un-talked about world and I can’t, and won’t, just forget it. Everybody should know what these brave children go through and everything should be done to make it stop. Taking part in this event will be a huge, huge, physical challenge for me, but I am determined to raise as much money as I can for this charity.
Admittedly, it may take me all day to complete, but I will do it. I’ll run for all the days my son couldn’t walk. I’ll cycle for the 135 days he lay in a hospital bed – unable to leave his room due to infection risk. For the 251 samples of blood he’s had taken from his little body, the 98 long hours he was pumped with toxic chemotherapy, the 22 NG tubes he had passed up his nose down the back of his throat and into his stomach so he could be fed, his Hickman line that was surgically placed in his jugular vein and hung out of his chest for a whole year, the 8 blood transfusions, the 12 bags of platelets, the 11 general anaesthetics, the 10 chest x-rays, the 5 CT scans, the MRI scan, the 9 ultrasounds, the 7 ECG’s, the 3 lumbar punctures, the 7 bone marrow aspirates, the trephine biopsy, his bone marrow transplant from his magical life-saving then 4 year old sister.
His second birthday and Christmas spent in isolation separated from family and friends, his bald little head, his screams, the fear in his eyes, and for all the finger pricks, heel pricks, NPA’s, drugs, BP’s, temperature’s, infections and tears that there have been so many it’s impossible to count. I’ll do it for him, for his future, for all the beautiful children we met who are now shining bright in the sky, for the 10 children who stepped onto the oncology rollercoaster today, and for the 3 of those 10 who will sadly die. I’ll do it because no child should have to go through the heart breaking hell that I have seen, I’ll do it because no parent should lose a child. And with every step I will be thankful that my beautiful, brave, brave, boy is here, that he is in complete remission and is winning his fight against this monster. I will be thankful for all the people who ran and cycled and did crazy challenges before me, who raised funds for much needed research into this dreadful, dreadful disease. Research that allowed my daughter, our incredible teams at Great Ormond Street, North Mid and the outstanding NHS, saved my baby.
Not that long ago our story would have had a very different ending. Research changed this, research kept our family together and research needs to continue.