Update Sept 18: Ringing the End of Treatment Bell
“It’s hard to believe that we got here – it’s been a long, long struggle. But we have come to the end of the tunnel. Dylan’s ok, the family is ok. It means the world to me we have come through it. At the moment he is just getting over his side effects. He is still having a lot of problems with his mobility, skin and psychologically as well. It’s a big deal when children are diagnosed, staying in hospital. They are away from family and then, all of a sudden, it’s all over. They have to deal with getting back to school, meeting up with friends again and being able to join in. I think that’s a big thing for him at the moment.
We recently had a lovely day out as a family at Zippos Circus, that was brilliant. It was an event where we could just be ourselves, chill out and we had fun together. We met other families that were or still are in the same position as us. Children with Cancer UK have helped us a lot with the days out, the communication and all the funding that goes into helping children with cancer. A lot of cancer charities don’t actually fund research in to childhood cancer and we know that Children with Cancer UK does. That’s a big thing for us parents.
My message to other parents and children currently receiving treatment is that there is light at the end of the tunnel. Everyone’s diagnosis is different and how they react to treatment, but our children are strong. Just love them, be there for them and hopefully you will get through.
Dylan said: I feel GOOD – we are going to celebrate with a party for ringing the End of Treatment Bell at Willows, Croydon Hospital and my 11th birthday on Saturday with, cakes, bouncy castle and lots of food.”