Update June 2017
Dylan is doing ok at the moment, he had a very long absence from school due to being neutropenic and chicken pox spreading around school like wildfire. After long absences he gets nervous about returning and is clingy to me and gets anxious but he copes really well and his school is amazing with helping him settle in and making sure he’s up to date on what they’ve been up to so he can fit back in easier. He’s had some problems with leg pains due to side effects of chemotherapy. They referred him to a physiotherapist, who in turn also referred him to a podiatrist for specialist insoles. Dylan has been given exercises to do at home to strengthen his muscles and will be starting hydrotherapy next week, we are hoping these treatments work and he is pain free and walking “right” again soon.
Most of the time, Dylan is very upbeat and gets on with whatever is thrown his way but still gets down sometimes with side effects especially the hair loss, I think he feels he stands out too much. Sadly for him his class is going away camping for a couple of days and he can’t go so is a bit upset about that, he hates to feel he’s missing out and is worried about his friends making memories together that he can’t be part of.
Dylan’s treatment is going well and we are all overjoyed that everything is running smoothly (apart from certain side effects) so we are really grateful for that. I often wonder why us? Why Dylan? And still can’t find answers to that but I suppose the thing I am most grateful for is the love and support we receive daily, it’s amazing.
My eldest son Lamar is planning to do a fitness day and is going to give 10% to Children with Cancer UK as we really do believe they are making lives better and with the launch of Precision Medicine, I’m sure a cure for childhood cancers will be forthcoming. Dylan meeting Linda Robson was another special moment, we’ll always remember as she was so welcoming and is one of Dylan’s favourite celebrities. (Photo: Linda Robson and Dylan at the Precision Launch in March 2017)
Lorraine, mum June 2017