A two-year treatment regime
The two-year treatment regime that followed involved daily chemotherapy, which we gave her. Once a month she would go to Stoke Mandeville for a stronger dose and a five day course of steroids too. Every three months we would take her to the John Radcliffe for a lumbar puncture.
She also had weekly blood tests. The blood samples would be taken using a Hickman Line in her chest – she’d had one inserted on her first visit to the John Radcliffe. Of course, she also had to take numerous different drugs over the two years.
Since diagnosis Elizabeth has been in and out of hospital with various infections. Around a year after diagnosis, during the second of her two intensive treatment periods, she fell very ill and lost a large amount of weight very quickly. She had to have a nasal feeding tube fitted to help her regain her weight. She kept it for six months.
Despite this gruelling treatment at such a young age, Elizabeth has remained an extremely bright and bubbly little girl. She nearly always has a smile on her face and very rarely complains about the treatments that she had to go through.