After three weeks, we left the Marsden to go home which again was very scary for us. You go from having the doctors and support around you to going home where you are on your own. I was very nervous about leaving but also glad to be going home so I could see Caitlyn too.
After the first four weeks of treatment Erin had gone into remission successfully which was a massive relief as it meant we didn’t have to have a bone marrow transplant which was great news.
The first year of treatment was very difficult. Erin was very ill from the treatment and we spent a lot of time in hospital. The regimen C treatment protocol is very tough and Erin received a lot more chemo than most leukaemia patients.
Caitlyn started school in the September after Erin was diagnosed in the August and I just managed to take her to school on her first day, after a friend offered to sit with Erin so I could take her. Caitlyn was so good in her first year of school, having friends pick her up more often than mummy and daddy but again not complaining about it.