Ethan was given the strongest, most intensive level of treatment
As his condition was so advanced, Ethan was given the strongest, most intensive level of treatment over three years. Because Ethan and Kai are identical twins, Kai was at high risk of developing leukaemia, so he was tested there and then.
Thankfully, the test showed negative, but he continued to be tested every two, four, six and then eight weeks in the first year of Ethan’s diagnosis. We were practically living at the hospital during Ethan’s treatment, which was really difficult. I had to give up my job – just one chemotherapy session could last eight hours. As well as the twins, there was also my other son and stepson at home, and it affected the whole family.