Nieve struggled with weight loss
While all this was going on Nieve was being (nasogastric) fed, and we struggled to find a feed that she could tolerate. She lost a lot of weight and was being sick several times a day, despite anti-sickness medication. Eventually we found a feed that Nieve could keep down and she was finally allowed home. This was a huge boost for our family, especially Nieve’s then seven-year-old sister, Francesca, who had struggled with being apart from her little sister for so long. Nieve continued to have chemotherapy
as an outpatient for a further 10 months. She also underwent three weeks of radiotherapy
, and various minor surgeries. Nieve remained fairly well for the remainder of her treatment, with her biggest issue being sickness and maintaining her weight.