The cancer did not respond as well as expected after the three cycles of chemotherapy so a course of radiotherapy was on the cards. This didn’t sound too bad to us and the ward staff did not make a big deal out of it.
Then, we met with the radiotherapy oncologist and learned of the side effects from traditional radiotherapy. This included increasing the chance of developing a second cancer throughout his life.
As any radiation would be targeted under the eye, it is close to the pituitary gland (responsible for his growth) and the front of his brain (where his learning and development could be affected).
There was also the likelihood that he would need cranio-facial surgery, as his facial bones and their growth would be affected by the radiation. As Ross was only one year old, the more severe the side effects would be for him.
We went home and I researched and hunted the internet and came up with proton beam therapy. The downside – this was not available in the UK. I then started to contact the leading NHS specialists and approached our radiation doctor. She was happy to submit Ross for approval.