So many GP visits
After repeated visits to the GP over the next two months, having them roll their eyes at me, tell me my child was a naughty boy (he was five months old), being told a petechia rash all over his legs was nothing, I asked them to test for cancer. I was told that I was a really paranoid mum, who needed to lock my screaming baby in a room until he stopped crying. I decided to see a locum GP who didn’t know us. My mother’s intuition, my conscience, gut instinct, whatever you want to call it, it was screaming inside my head that my baby was dying. He wasn’t fine and I had to do something about it. Ted had reverted in a matter of weeks from crawling and cruising furniture, to not being able to sit up and couldn’t cope with being touched as he would scream in pain. He wouldn’t feed and cried non-stop.
The locum told us his liver and spleen were very enlarged and his heart was racing, so she thought he was anaemic. He was exclusively breastfed at this point, and I was healthy, so I knew he had leukaemia. We had a blood test and the nurse who took his blood gasped, as it was pink in colour and ran like water. She remarked “Gosh, he is a bleeder”. We were told the results would take a week, but I felt in my heart he wouldn’t survive another week without help.