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The difficulties of diagnosing a brain tumour

Every year, around 400 families receive the news that their child has cancer of the spine or a brain tumour. Each family’s journey is different.

Blake's mum tells her story

When Blake was finally diagnosed with a brain tumour, he was given three weeks to live. Four years on, mum Llian tells their story. Please listen to her five short podcasts below.

Blake during treatment

The symptoms and diagnosis

After months of various different symptoms, an MRI scan finally showed Blake had a brain tumour. Immediate surgery showed that it had spread to his spine. Blake was given three weeks to live. The family were heartbroken – the diagnosis had been missed for months.

Mum Llian kisses Blake in his hospital bed

Treatment

After consulting with surgeons from around the world, it was decided to give Blake chemotherapy, although it had never been tried before on a brain tumour at this late stage. He nearly didn’t make it!

Blake in his wheelchair

The long term effects

The long-term effects are from the treatment not the cancer. Blake is paralysed from the chest down and has some brain damage. It’s getting harder as he gets older. He needs carers to sleep with him at night. He needs help for every aspect of his life.

Blake smiling in his wheelchair

Something keeps you going.

You have to be strong for your child. You’re all they’ve got. But Blake helps us a lot. He’s got such a happy, funny sense of humour. He’s got the zest for life he always had.

 

Blake in February 2018

A scan every six months

The doctors believe the tumour will return. An earlier diagnosis would have given Blake a better chance. We need more research so there are better treatment options – to give our children a better chance of a better life.

 

Blake’s Train & Tube appeal

Blake’s appeal panels are being displayed on trains and the London Underground. He’s asking for your help. Brain tumours like Blake’s cause more deaths than any other childhood cancer.

How can you help

Please help Blake to beat his brain tumour.

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