I want to see him fly
Of course, we are excited to see what Felix will become without the shackles of daily chemotherapy, blood tests and appointments. For the last 3 years, his wings have been clipped both physically, academically and socially. I want to see him fly, take risks and blossom. I want Talia and Rufus to no longer fear illness, absence and fatigue. Whilst our sense of freedom will be different from what we had before, I can’t wait to feel free from treatment plans, protocols and trials.
However, with this brings apprehension and fear. Since January 2019 our future has been mapped out for us. Our oncology team is like an overarching matriarch that has monitored and watched our every single step. Whilst they will still be there lurking, we will be on our own. For the first time in 1,183 days, we will be able to make decisions without verification from our consultant. From treatment by a dentist to our holiday plans – this will once again be owned by just us.