Update: May 2017
As of the end of July 2016 I have completed five Cycles of VCDE chemotherapy and shortly after I got told the great news that I have no evidence of disease on my PET scan. By the end of October 2016 I had completed 28 cycles of radiotherapy to minimise the chance of recurrence.
Unfortunately as of February 2017 my most recent PET scan I had for a check-up confirmed that my alveolar rhabdomyosarcoma has come back once again but inside my right lung and also a tumour that is sticking out of my back on my spinal column.
My oncology team has now recommended chemotherapy drugs Gemcitabine and Docetaxel and I started treatment two weeks later. Within me completing half a session of chemotherapy I got admitted into the hospital for a chest infection, but also discovered that I had a build-up of fluid and also evidence of progressive disease which was taking up nearly a quarter of my right lung.
My oncology team told me since I have hardly had much treatment at that point, this doesn’t change my treatment plan but it is very worrying and hope that I start responding to treatment soon. Whilst I was in the hospital I got treated with IV antibiotics, and got the build-up of fluid removed under local anaesthetic.
As of right now I have completed two and a half cycles of Gemcitabine and Docetaxel and me and my oncology team are starting to notice that I am starting to show signs of responding to treatment. My tumour on my back has got smaller. And furthermore I went for a chest X-ray, and I then got a phone call that from looking at my X-ray that the disease that is in my lung and on my back is all getting smaller.