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Ellie's story

Hi everyone! My name is Ellie and I am 18 years old. When I was 14 I was diagnosed with Alveolar Rhabdomyosarcoma.

With 18 months of treatment ahead of me, I knew I wanted to give my cancer diagnosis some purpose, I especially wanted to make something good out of a bad situation. So, I started a YouTube channel, so that I could reach out to other cancer fighters and also share my cancer advice. My videos are mainly cancer advice videos, life updates and cancer vlogs. I really enjoy making them because it means I can help other people in my situation. Also, being a very sporty kid before, making videos became my new hobby and distracted me from the harsh reality of cancer. It was very therapeutic for me and gave me a sense of purpose.

Rhab-do-my-o-sar-coma – why does medical jargon have to be so complicated? I was 14 years old, still recovering from the news that I had cancer, and now I was given a diagnosis that I couldn’t even pronounce, let alone spell! Ahead of me, I faced the prospect of 9 rounds of intensive chemotherapy, possible surgery, 28 sessions of radiotherapy and 12 months of maintenance chemotherapy. I couldn’t comprehend how ill I would become or the uncertain future that lay ahead of me, but the one thing I could control was my attitude towards my journey: from day one I told myself that I WILL fight this cancer and I WILL stay positive – no concoction of drugs could override my immense self-belief and positivity. Of course, there were days that I felt like giving up, or that I felt that I was certain to die of this disease, but you get through it and you stay strong.

Currently, I am 16 months in remission and I am living life to the full! I still get 3-monthly scans and regular consultations with my doctors, but I am beginning to feel normality settle into my life again. In September, I will begin studying Biology, Chemistry and Maths at A-level, and my biggest achievement so far is certainly being the Founder of TeensVsCancer.

What is it like to be a childhood cancer patient?

“I’ve been through it and now I want to inform you guys and give you a bit of advice about what to expect. Today’s video is about cancer diagnosis.

 

“I hope this video helps you and informs you about what to expect and what it’s like”.

My first chemo at 14!

“If you have cancer already I am someone you can relate to because I know how isolating cancer can feel.

“Make sure to stay to the end of the video where I share my top tips for how to cope with chemotherapy”.

In this video, Ellie talks about returning to school after treatment. Ellie gives different tips for making new friends, chemo-brain, fatigue and workload.

How you can help

If you’ve been touched by Ellie’s journey, help us invest in the high quality research that really matters which would otherwise go unfunded.

This helps to support children with cancer so they can be with their families for longer.

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Have you or a family member been affected by childhood cancer?

Many of our supporters have been affected by childhood cancer – either through family, friends or their own personal experience. These patient stories can help inspire others to get involved with us, or can support our media work.

If you have a story that you would like to tell, please contact us by email.