Crying and complaining of a headache
Henry had been looking very pale over the winter of 2015 just after his seventh birthday but otherwise he seemed fit and well. It was his second day back at school, Year 2, in the first week of January and I received a phone call to say that Henry was crying and complaining of a headache. This was unusual behaviour for Hen so I went to pick him up and called the doctor on the way as I thought he may be anaemic. Luckily the doctor said to bring him straight in so I drove Hen from school straight to the doctors, although at this point I really did not imagine he was so seriously ill. Our family doctor took one look at Henry and sent us straight to the hospital. This was Friday 6th January 2016 in the afternoon and from there we were rushed to a major hospital in an ambulance, a 90 minute drive, and Hen was diagnosed with Acute Lymphoblastic Leukaemia
on Monday 11th January. His Minimal Residual Disease
(MRD) test came back as low risk and before we knew it we were embarking on a gruelling schedule of treatment initially to get rid of the Leukaemia, to achieve remission and then a further three years of daily maintenance chemo to ensure that it does not return. Writing at this point in time we are 61 days from the end of treatment on 9th March 2019, we have got through 1095 days of treatment so far.