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Jaymen's story

Jaymen was diagnosed with neuroblastoma in January 2019 when he was only 22 months old.  His dad Jordan tells their story so far:

Jaymen had flu-like symptoms

At 22 months old, Jaymen has started to show flu-like symptoms which doctors believed was a viral infection, despite numerous visits to the GP. It was not until Jaymen stopped walking and was clearly in severe pain that something was finally done.

Shocking diagnosis

We went to hospital and after further investigation, which included scans and lots of tests, we received the devastating news that Jaymen had stage 4 high-risk neuroblastoma.

Jaymen had a tumour on his spleen but the disease had spread to his skill, jaw, arms, legs and chest. His arm was also fractured due to the disease and had to be put in a cast.

Our world came crumbling down that day. We just couldn’t believe what was happening and how so much of his little body was consumed with cancer. We felt completely broken. Jaymen’s sister is nearly four years old and it was a lot for her to take in as well.

Intensive treatment

Since diagnosis, Jaymen has had seven rounds of induction chemotherapy follower by an 8-hour surgery which removed 95% of the tumour. Then he had high dose chemotherapy followed by a stem cell transplant which meant being isolated for six and a half weeks where he also developed a disease on his liver which was also potentially life threatening.

He has since been discharged and is resting before his next scans and commencement of radiotherapy and immunotherapy.

We have a long journey to go

We have a long journey to go, but Jaymen has responded well to treatment up to this point. We don’t know what the future holds, but we will do everything in our power to ensure that our little boy survives this disease.

How you can help

If you’ve been touched by Jaymen’s journey, help us invest in the high quality research that really matters which would otherwise go unfunded.

This helps to support children with cancer so they can be with their families for longer.

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Many of our supporters have been affected by childhood cancer – either through family, friends or their own personal experience. These patient stories can help inspire others to get involved with us, or can support our media work.

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