Intense treatment – chemo and radiotherapy
Krystal had intense chemo every three weeks for three days – six doses at once. It was tough, but she was tougher. Her hair had fallen out after the first two weeks. In the first eight months we were only home for around 12 days.
The hospital had become our second home. Krystal had many blood transfusions, platelet transfusions and antibiotics, but we got used to it. We made a lot of friends on the oncology ward. Friends that I know will always be there for us.
Her central line got infected a lot. It needed removing a few months in, and a new one put in the week after. Krystal’s tumour on her upper lip had spread to her lymph nodes in her neck and we were told she also needed radiotherapy. She had this in the adult hospital at the Clatterbridge Cancer Centre.
It was for seven weeks, every day. She had a total of 28 sessions to her face and neck. It was harder than chemo. She had anaesthetic every day and had to fast every night at midnight. She had a breathing tube down her throat too.
The radiotherapy burned her skin off and she needed neck bandages every few hours with creams to ease the pain, and steroids to calm the swelling inside and out. She also had a nebuliser to ease her breathing. She couldn’t cry or talk, it was so painful.
Krystal still had her chemo in between the radiotherapy. You wouldn’t think they could do so much on a little baby. They definitely tested us both, but she was still smiling. Her strength was amazing.