Our last few days with Olivia
At this point we were told there was nothing more they could do. We were advised to sign a Do Not Resuscitate order (DNR), which we did. We were transferred back to our local hospital, to Olivia’s favourite room, for end-of-life care.
Olivia amazed us all, entering the ambulance unresponsive and gradually getting more alert as we got closer to home. By the time we arrived at our local hospital she was trying to sit up. The next day she was wandering around the ward after her beads of courage!
We decided at this point to take Olivia home and spent the best weekend together with Olivia and her brother and sister, laughing and joking. She gave us so many lovely memories.
Over the next few days Olivia began to sleep more, until the Thursday when she woke for the last time. I got the chance to tell her how much I loved her and how brave she was. She used all her strength to reply that she loved me too.
Olivia slept peacefully after that until late Saturday night, 10August 2013, when she slipped away peacefully surrounded by family, her favourite nurse Holly, and our priest. This was less than four weeks from the prognosis of 4-6 months we’d been given if she went without treatment.
She was an amazing, inspirational young girl who never complained as long as she could be at school with her friends, the teaching staff and the teacher with whom she formed a very close bond. She showed us the true meaning of courage and touched the lives of all that met her or even just knew of her.