Symptoms and several diagnoses
Olivia’s symptoms began in early 2011 with headaches and vomiting about once a month. The doctor diagnosed this as migraines. Sometimes these were followed by a few days of a feeling of pressure in her head and being unsteady and tripping up, but this always resolved within a few days. We took Olivia to the opticians and she was found to have normal vision in both eyes.
This carried on until July 2011. Now Olivia’s eyelids were puffy and her eyes were only half open – some days were better than others. The doctor diagnosed this as hay fever.
The headaches continued until August 2011 when Olivia had a severe headache with vomiting, lasting five days. Olivia was now unable to lie flat and was vomiting, or nauseous, most mornings. Olivia kept getting a sensation – which we later found out was pressure in her head – which she described as ‘feeling like she was going to die’. We called NHS Direct and they diagnosed a sickness bug.
It was now early September and Olivia was not getting any better. We took another trip to the doctors and listed all Olivia’s symptoms: headaches once a month, daily nausea and vomiting with inability to lie flat, excessive thirst, going to the toilet a lot, weight loss, droopy eyelids, and a feeling like she was going to die.
This time acid reflux was diagnosed and treatment given for that. Over the next few weeks Olivia got worse. There were lots of trips and phone calls to the GP and a referral was made to a paediatric gastroenterologist. The appointment was for a few months’ time.