Sam is now a healthy teenager
Some very difficult situations also arose on the ward. The unfortunate loss of life for a number of patients we knew well. These losses added pressure of the unknown – whether Sam would make it. We are so very thankful he did, as well as so sorry for the parents that lost a child.
After spending all that time in and out of hospital over the years, Sam is now a healthy 13-year-old. He has annual check ups at Leicester Royal Infirmary to make sure everything is going well. He also has separate heart checks every 18 months at Glenfield Hospital as he has an enlarged ventricle they are keeping an eye on.
Although we know Sam shows no sign of relapse, these appointments are still difficult to attend emotionally and can throw up some bad memories.
Sam doesn’t remember many things from his early days in hospital. But he did tell me the other day he remembered being held down by me so he could have a vital injection – an injection he had to have in alternate legs every day for eight days. Sam finished his treatment in 2003.