Coping as a family
I do not know what the future holds for our family. Sam’s illness has made us live for the day.
We find the five days a month when he has steroids very challenging – but his friends are very accepting, his friends’ parents very understanding and his school very accommodating. They know that it’s Sam’s chemo making him emotionally and physically less able and they all work together with us to help him cope. We are incredibly lucky and it has made his illness less isolating.
Sam is now eight, and I could not be prouder of how he has dealt with everything life has thrown at him. We make the most of every day and try and fill our lives with as much joy and fun as possible.
A while back Sam said: “Mummy, these may be the best three and a half years of my life”. He’s still saying that after two and a half years. So I feel, as a mum, that I am doing the best job that I can. Trying to make these years as fun as I can, so we have more happy memories than sad ones. The whole experience has certainly brought us closer as a family. And Sam and his brother, Ross, have developed a special bond too.”