Months of worrying symptoms
I had been taking Thomas to the GP for months prior to his diagnosis as he had been struggling to breathe, particularly at night, and was complaining of pain in his knees and other joints. He was also tired all the time, barely eating, saying he felt sick constantly and he was always covered in bruises.
I kept taking him to the GP, but they put his symptoms down to other causes such as asthma, or they accused me of making up his issues and even causing the bruises myself. This was incredibly upsetting to deal with.
Thomas had been off school for a week in February 2019 as he had sickness and diarrhoea. One night I found that his body was covered in a rash that appeared from nowhere. I went to grab a glass and put it over the rash. It didn’t disappear. I instantly thought it was meningitis, panicked, called 111 and rushed to A&E.