Bethan’s victory against Ewing sarcoma
Read Bethan’s story, told by her mum, Lynn:
“In October 2011 Bethan complained of pain but had no sign of bruising. She had a very high temperature that I couldn’t control and a strange rash all over her body. She recovered slowly but it was unusual for Bethan as she was never poorly.
Soon after, we found a lump on top of Bethan’s left arm – it appeared almost overnight. I’d never seen anything like it, we went to see the doctor.
We had a hospital appointment for an X-ray – it saved her life. When the doctors gave a clinical diagnosis of Ewing’s sarcoma, it was life-shattering. I couldn’t believe it, I just wanted to take Bethan home. She needed a month of intensive scans and tests. After the biopsy the surgeon spoke to us he was certain it was Ewing’s sarcoma.
Chemotherapy commenced. Bethan was on four drips at once – she was very poorly, it was fed through a tube and just awful. She was supposed to be home for two weeks between each cycle but it never worked out like that – she’d come home, her blood levels would drop and she’d need to go back to hospital for a blood transfusion. She was at home for three or four days at most, we pretty much lived in the hospital.
In July 2012, Bethan needed a life-saving operation. The consultant gave us a list of treatment options to choose from. We were concerned about Bethan losing her arm, but we chose the option to give her the best chance of survival. They removed Bethan’s shoulder, humerus and elbow bones, irradiated it and put it back. She was on the operating table for eight hours. She’s been left with extremely brittle bones as they are now dead, so she has no feeling in her arm. But thankfully, 100% of the Ewing sarcoma was removed.
In September 2012 Bethan started eight more rounds of chemotherapy and it was a little easier for her to bear. She wasn’t in hospital as much but she still needed blood regularly. During this time, we were able to enjoy Bethan while her bloods were good and go out a bit!
Three months later Bethan had her last round of chemo, what a day!
Bethan has now been off chemotherapy for five years and is in remission.”
If you’ve been touched by Bethan’s journey, help us invest in the high quality research which would otherwise go unfunded, helping to support children with cancer so they can be with their families for longer.
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