Ceylian was two years old when it all began
In November 2016, Ceylian’s reactions began to slow down – he had difficulties walking and by December it had got much worse. His GP sent him to our local hospital to have an MRI, which showed a 5cm orange size tumour on the back of his head.
Ceylian had to have surgery and his amazing neurosurgeon fought with the hospital to organise the surgery on a bank holiday weekend. We couldn’t wait until next Monday as Ceylian’s condition was getting worse and worse – he couldn’t talk properly or stay still on the hospital bed. We were losing him.