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Lucas's Story

Lucas was diagnosed with neuroblastoma when he was born. Today, he is a happy, healthy little boy.

His great Aunt Larya tells his story.

“When Lucas was born in June 2010, the doctors knew immediately that something was wrong.  He had a huge distended stomach and was rushed straight to intensive care at Queens Medical Centre, Nottingham.

Four days later, we were told that Lucas had neuroblastoma.

Neuroblastoma is the second most common solid tumour in childhood, affecting just under 100 children a year in Britain. And our little Lucas was one of them.

Lucas in his first weeks

The family pulls together

Lucas’s mum Lydia and dad Luke stayed with him in hospital for the full four weeks, they just didn’t want to leave his side.

I stayed with them for about three days, and it was a struggle just to get them to have a quick coffee or a sandwich. They had a huge fear that something would happen in the minutes they were away, but thankfully, everything was ok.

Despite the difficulties and needing to give Lucas so much attention, Lydia and Luke stayed strong for their family – Lucas has a sister Caitlin and brother Lathan.

It was important to them that their children never felt left out, and they all pulled together as a family.

Treatment, follow up and progress

Over the four weeks, Lucas’ treatment was intensive. He had eight blood transfusions, a lumbar puncture and of course, chemotherapy over three days.

He stayed in hospital for another couple of weeks before he was able to come home.

He still has to visit the consultant every twelve weeks until he is five years old, but the doctors are very happy with his progress.

Commonly used terms in treatment

Our little miracle

Thankfully he hasn’t had any side effects from the treatment. He was walking really quickly, he’s incredibly smart and inquisitive, and most importantly, a strong, healthy little boy.

To see him now, you wouldn’t know that Lucas had been so unwell. Today, he is a very happy child – our little miracle.

A poem for Lucas

I remember the call from my nephew Luke telling me about Lucas.  He could not say the word cancer when telling me, which is why he refers to it as the ‘c’ word in his poem.

The hospital where Lucas has been treated asked for a copy of the poem which now features in the hospital ward.

Larya wearing a race vest

Fundraising could change lives

It’s because of Lucas that I ran the Virgin London Marathon in April 2012.

It’s just a few weeks of training and fundraising, but for children like Lucas, my fundraising efforts could change their lives.”

In 2011, to try to improve survival for children with high-risk cancers like Lucas, we awarded £198,011 to help fund a new experimental cancer therapeutics programme at Great Ormond Street Hospital, led by Dr Darren Hargrave.

Have you or a family member been affected by childhood cancer?

Many of our supporters have been affected by childhood cancer – either through family, friends or their own personal experience. These patient stories can help inspire others to get involved with us, or can support our media work.

If you have a story that you would like to tell, please contact us by email today.

How you can help

There are lots of ways that you can help children like Justin in their fight against cancer.

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