Sebastian had more scans and then the chemo started. We didn’t know how he would respond.
It went ok but I spent the whole three days crying because our baby boy looked so poorly. He was always such a happy lively little lad, even with this tumour inside him, but the chemo wiped him out and he slept for two days.
His hair started to fall out a few weeks later and it was bothering him. So, while he slept, I sat and stroked all his hair out. It was the most bizarre thing I have ever done – removing our beautiful boy’s hair as he slept.
Weekly chemo took place for six weeks and then it went to three-weekly. Sebastian suffered some infections because of his catheter, so we spent most our time at the hospital.
He has had many transfusions – both blood and platelets – and has to have daily injections if he is due a scan or surgery.
When we are home, and his neutrophils are high, we have some lovely days out to the farm or park or garden centre.