Update August 2019: Looking forward to ringing the end of treatment bell
Sophia continues to do well throughout maintenance although the monthly pulses of chemotherapy are very hard on her body. Vinchristine and the steroids are probably the hardest thing throughout maintenance. Sophia’s tremor returns and she is overwhelmed with fatigue. But thankfully we do have about two weeks of “normality” in between each pulse. So we have stayed fairly hospital free and have not needed any inpatient stays since April. A real blessing! We are absolutely delighted to say that on the 12th September, one day before Sophia’s 5th Birthday, we will be ringing the End of Treatment Bell
. At times this has felt like the longest journey, and at other moments time seems to fly. Sophia will also be starting school on the 4th September! We are so proud of her! are placed into hospitals for children and adults with cancer to ring after their gruelling treatment.