Update: September 2017
In March 2015, Dylan had just relapsed and what followed was an intense six weeks of radiotherapy and general anaesthetic every day for six weeks. After that, he eventually had a couple of weeks off allowing us to take him took on a Make A Wish Trip to Disneyland Paris.
When we got back he started his one year chemotherapy. He had a few complications such as contracting various infections and chicken pox whilst in hospital but otherwise it went reasonably well. He finished the treatment around 12 May 2016 and we are now a year post treatment.
We’ve had stable scans, but he has been left with long term side-effects from the treatment and the cancer itself. He no longer produces his own hormones and has to take growth hormone injections every day, his body does not produce his own thyroxin so he has to take tablets for this, he has to wear hearing aids in both eyes which he hates and has to wear glasses.
The cancer on his spine has led to further complications which include having very weak legs; Dylan needs a lot of physiotherapy. He is now registered disabled. His ankles and feet roll in, so he has to wear special insoles to keep his feet in the right position. Our last option is to have splints to help support his feet and I know Dylan will not like that at all.
I have two other children; my seven-year-old son is really good. He helps me look after his younger brothers and he helps with the washing up. I know he does miss out on what other seven-year-olds do. My three-year-old son, as young as he is knows how to dress himself, gets his own clothes, and puts on his shoes. We are a small team and we manage as best as we can.
Dylan is now five years old and is doing really well, he is happy and has started school. He is currently in the same school as his older brother. The school have been great and has supported Dylan with his education. He has a lot of friends and we try to keep busy by going to a martial arts class to help with his balance. Dylan is healthy considering his complications.