We arrived at hospital on Friday 11 September and within hours the night nurse had fallen in love with him. He would blow kisses at the nurses, shake hands with the doctors, laugh and tickle them and he fell in love with the night nurse, Tiffany, or Tiff-Tiff as Louis called her.
We have received such love and support from friends, family and strangers alike. Since then, he has shown such courage and strength of character, which is what will get us through this. We have received such love and support from friends, family and strangers alike.
If we are sure of one thing, it’s that Louis will fight this and he will get better. His fighting spirit is getting stronger the older he gets.
He’s been on treatment for 20 months now and he battles on each day without a fuss. He does fight us terribly when he has bloods done or chemo when he has to be held down, but we have always seen this as a positive thing.
As we see it, that’s him fighting the leukaemia with that same determination – and Louis will win the fight. Louis’ treatment will finish in November 2012. Most of his treatment so far has been as an outpatient but he gets infections roughly every six weeks and we then have to be admitted for three day spells for tests and antibiotics.
We decided to set up a website as a way of updating everyone in one go. We want to make sure the majority of our time is devoted to Grace and Louis and focusing on getting Louis better.